Friday, April 25, 2025

Friday check in: a brief trip and in extremis

 On Tuesday I drove 430 miles to Paducah, Kentucky, for my first-ever AQS show.  My librarian friend Terri lives in Paducah and invited me to stay at her house in town.  

En route I got a call from the nursing home telling me that Stevens had very low blood pressure so they were sending him to the hospital.   


Anna, my Magpie friend, and I signed up for the AQS Awards Ceremony to start the show. We had gotten our food and were chatting with people at our table. My phone rang. I went out to the lobby to talk to the ER doctor who said S had a pulmonary embolism (blood clot in the lung) with two courses of treatment: surgery or blood thinners. I opted for surgery subject to the ER consultation with lung specialists.  

Awards over (wow, seeing so many Well-Known Quilters in one room!)  Anna and I went to the convention center for the Sneak Peek (=early opening).  On the show floor, as I was viewing a quilt called Colorful Chaos, the ER doctor called.  Due to co-morbidity (=dementia) surgery was not advised plus they found

Colorful Chaos

metastasizing tumors in S's pelvis.  They would move S from the ER to a regular hospital room.  I asked the ER doctor to have S's primary care physician call me.   That doctor happened to be on call that evening and he called me (still on the show floor).  He was so reassuring and said that S would be admitted for in-hospital hospice.

I actually slept well at Terri's.  I left at 6 a.m. and drove the 430 miles back home.  The weather was beautiful and once I reached Chicago the traffic was mercifully light.  

At home I had time to unload the car before going to the hospital.  Stevens is in a hospice suite.  He is unresponsive.  Any movement is only reflexive, not voluntary.  No food or water.  (His digestive system no longer works. He would choke on food and might aspirate water into his lungs.)  (A person in this state can live as long as ten days without water, I learned.)    I could stay overnight in the suite but I'm not -- better to be home where I can rest comfortably.   Yesterday afternoon (I was there) our pastor gave him communion.  (Dipping a sponge into the grape juice and passing the wafer over his tongue.) 

I picked up his clothes from the nursing home. As I was hanging the shirts in his closet and putting the socks in his dresser it hit me that he will never wear any of them again.  And I cried.

I am okay.  Sad, but okay.  I will write more later. 

27 comments:

  1. So sorry to hear about Steven, Naan. ;(((
    I am keeping you in my thoughts and prayers for you both.
    Hugsx2, Julierose

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  2. Oh Nann - I'm so very sorry to hear this. Thoughts and prayers are with you both.

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  3. Thoughts, prayers and blessings coming your way for you, Steven and all who love him.

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  4. Crying will come again, and it may seem as though it will never stop. But it will, and you will have mended just a little more as a result. Hugs,

    Carolyn

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  5. Nann, thinking of you this morning. Your quilty friends around the country and world are sending you all the love and hugs we can, to hold you up at this time. Take care. 🩷

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  6. Love and prayers for you both, and comfort for you as you go through this heart-wrenching process.

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  7. My heart aches for you - having been thru this twice so recently, I want to hug you and bring you dinner, and clean your house and anything I could do... I am so sorry and know that you are being lifted up by our quilting community.

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  8. Dear Nann, I'm so very sorry. You are in my thoughts. (((Hugs)))

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  9. Sadly, each of us knows this time will come in our lives but there is no way to be fully prepared for it. My heart goes out to you as the long journey with anticipatory grief moves closer to its inevitable end. Like Alycia, I wish I could offer tangible support but I hope you know how many of us have you and your family in our thoughts and prayers.

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  10. What a terribly difficult time - thinking of you both. It sounds very wise to get a good rest when ever you can.

    Ceci

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  11. I hope the end is peaceful and pain free. Sending a virtual hug.

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  12. I am so sorry, Nann. I've been there. May you find some peace by remembering all the good things.
    Pat

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  13. It will be a long wait for you and I'm sorry you have to go through it. Please look after yourself, food, liquids and as much sleep as you can manage.

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  14. This is the journey thru grief that nobody wants to take....

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  15. Nann, as a hospice and ICU nurse, I am so sorry, and I know your heart is breaking. My heart is with you. Julie of juliekquilts

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  16. From what you have shared of your life together, I can say this - You created a beautiful life with Stevens, making sure that he was healthy and happy at all times. You enriched his life in every way. As this journey comes to an end, as all must, you will have joyful memories to cherish. You are an inspiration, Nann. Sending you lots of love, hugs and warm wishes.

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  17. Oh, Nann! I just wish I was there to give you support and a few hugs. I'm at a loss for words.

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  18. Nann, I'm so sorry to hear this news. Sending you strength and love.

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  19. Oh Nann, I know how hard this is. Sending you love and hugs and many many prayers!

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  20. Sending you love and hugs. I understand. Keep going forward, dear one.

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  21. Sending you and Stevens love and prayers.

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  22. I am a recent follower. Sending you a virtual hug. What helped for me with loss is having a happy memory of the person, an image to bring into my mind anytime I thought of them.

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  23. Sending you prayers and virtual hugs. Viridian/Andrea

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